{"id":3496,"date":"2025-10-29T16:16:00","date_gmt":"2025-10-29T15:16:00","guid":{"rendered":"https:\/\/ph-vzw.be\/2025\/10\/29\/doe-mee-aan-de-nieuwe-rare-barometer-enquete\/"},"modified":"2025-11-05T11:59:13","modified_gmt":"2025-11-05T10:59:13","slug":"enquete-rare-barometer","status":"publish","type":"post","link":"https:\/\/ph-vzw.be\/fr\/2025\/10\/29\/enquete-rare-barometer\/","title":{"rendered":"Enqu\u00eate Rare Barometer."},"content":{"rendered":"

[vc_row gap=\u00a0\u00bb35″][vc_column width=\u00a0\u00bb1\/3″][vc_single_image image=\u00a0\u00bb3480″ img_size=\u00a0\u00bb\u00a0\u00bb][\/vc_column][vc_column width=\u00a0\u00bb2\/3″][vc_column_text]<\/p>\n

Faites entendre votre voix et participez \u00e0 la nouvelle enqu\u00eate Rare Barometer.<\/h2>\n

Faites entendre votre voix : participez \u00e0 la nouvelle enqu\u00eate Rare Barometer sur ce qui vous aide \u00e0 mieux vivre avec une maladie rare ou non diagnostiqu\u00e9e !<\/p>\n

L\u2019enqu\u00eate Rare Barometer est d\u00e9sormais ouverte ! Elle vise \u00e0 mieux comprendre votre exp\u00e9rience en vous posant des questions comme :
\nComment g\u00e9rez-vous le stress au quotidien ?<\/p>\n

Sur quel soutien pouvez-vous compter ?
\nParvenez-vous \u00e0 apprendre, travailler ou contribuer \u00e0 la soci\u00e9t\u00e9 malgr\u00e9 votre maladie ?<\/p>\n

 <\/p>\n

Cette enqu\u00eate mondiale est ouverte \u00e0 toutes les personnes vivant avec une maladie rare, ainsi qu\u2019\u00e0 leurs proches et aidants. Elle est disponible en 25 langues.Prenez 20 minutes pour partager votre v\u00e9cu avant le\u00a016 novembre 2025\u00a0en cliquant ici.<\/p>\n

Les r\u00e9sultats globaux seront partag\u00e9s avec les participants, les associations de patients, les d\u00e9cideurs politiques et le grand public \u2014 afin d\u2019amener des changements concrets et des solutions pour \u00a0les personnes avec une maladie rare.<\/p>\n

 <\/p>\n

Rare Barometer respecte le R\u00e8glement G\u00e9n\u00e9ral sur la Protection des Donn\u00e9es (RGPD).[\/vc_column_text]

Allez \u00e0 l\u2019enqu\u00eate<\/a><\/div>[\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"

Faites entendre votre voix et participez \u00e0 la nouvelle enqu\u00eate Rare Barometer.<\/p>\n","protected":false},"author":12,"featured_media":3482,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[63,143],"tags":[64],"class_list":["post-3496","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-maladies-rares-fr","category-onderzoek-fr","tag-maladies-rares"],"acf":[],"yoast_head":"\nEnqu\u00eate Rare Barometer. - Pulmonale hypertentie vzw<\/title>\n<meta name=\"description\" content=\"participez \u00e0 la nouvelle enqu\u00eate Rare Barometer sur ce qui vous aide \u00e0 mieux vivre avec une maladie rare ou non diagnostiqu\u00e9e !\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ph-vzw.be\/fr\/2025\/10\/29\/enquete-rare-barometer\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Enqu\u00eate Rare Barometer. - 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